My Story: Giving Advice to Other Endometriosis Advocates

By Saniya Ghanoui —

HG discusses how we can continue to fight for those who have endometriosis.


OBOS Today: Is there anything that we have not discussed so far that you would like to share? 

HG: Um, I think you know just stand up for yourself, you are your own best advocate, and I know that sounds sort of ironic, when you know it shouldn’t be on your shoulders, but unfortunately, in order to get answers, you sometimes, we have to do it for ourselves. But more than that too, it’s, it’s really about using your journey to help others. You know I don’t want to see anyone continuing to go through needless—and it may be incorrect for them, treatments repeatedly, you know, there is a better way. And, and you can seek that out, and you can find the right answers for you and again it’s not one size fits all, what works for me isn’t going to work for you. 

But when we collaborate and we put our heads together and we share the best possible information about this disease throughout the public and then that means early education in the school setting, kinship settings. It just sort of, in the public, across the board, when we share the correct information, people can do better, when we know better, we do better. 

OBOS Today: That’s really amazing. do you have any additional questions before we conclude the interview? 

HG: I don’t think so. It’s just you know I want people to know the pain is not normal and endometriosis this is real, and it is way more than just painful periods.