To Have or Have Not: Breast Reconstruction and "Going Flat"
By Amie Newman — November 3, 2016
In a recent video making the rounds on social media, two women proudly show off their scarred, flat chests. Debbie Bowers and Marianne DeQuette Couzzo take off their t-shirts as they talk about what it means to live without breasts. Both women survived breast cancer. And both decided not to undergo breast reconstruction, a surgical process where the shape of the removed breast is rebuilt. These two friends are “going flat,” a brave move in a world where women are often seen as the sum of their breasts and bodies.
When a woman undergoes a mastectomy, she usually has two options: she can have immediate reconstruction, where both the mastectomy and the breast reconstruction are performed in a single surgery, or she can have a skin-sparing mastectomy, where the surgeon leaves some breast skin, so that she can wait before deciding whether or not to have reconstruction.
Women’s health advocates fought hard to improve access to reconstructive surgery for all women. In 1998, Congress passed the Women’s Health and Cancer Rights Act, which requires health insurance plans that offer breast cancer coverage to also provide breast reconstruction and prostheses. It was an important victory for women’s choice.
Since then, breast reconstruction is more widely offered and undergone. According to a 2014 study, 56 percent of women choose to undergo reconstruction surgery after mastectomy. And as this New York Times article notes, “…medical professionals have embraced the idea that breast restoration is an integral part of cancer treatment.”
The American Society of Plastic Surgeons created the first national “BRA Day” (BRA stands for Breast Reconstruction Awareness) in 2012. Their stated goal is to educate breast cancer patients on their surgical options. They also fought for passage of the Breast Cancer Patient Education Act, which requires the Secretary of Health and Human Services to plan and implement an education campaign to inform breast cancer patients about the availability and coverage of breast reconstruction and other available alternatives post-mastectomy.
This is all good news, yet some women feel that the efforts to increase knowledge of and access to reconstruction can sometimes erase the experiences of women who chose to forego reconstructive surgery, and that doctors too often fail to educate women about the full range of options. The experience of Ms. Cuozzo, one of the women in the video mentioned above, is not uncommon: “I was never told there was a choice. I went from the breast surgeon to the plastic surgeon, and they said, ‘This is what you’re going to do.’”
Many women’s health activists are concerned that women also aren’t being truly informed about the health risks of reconstruction. A small U.S. study found that while most women reported talking about breast reconstruction with their doctors, only 28 percent remembered talking about the risks of the surgery.Learn more about the risks of breast implants and the need for better research ->
There are several different types of reconstructive surgery. Breasts can be rebuilt using implants — either saline or silicone — or they can be rebuilt using autologous tissue, which means tissue from different parts of the body. Sometimes both techniques are used together. The New York Times reports that up to one-third of women experience complications from reconstruction. These complications include infections, accumulation of clear fluid causing a mass or lump (seroma) within the reconstructed breast, pooling of blood (hematoma) within the reconstructed breast, and blood clots. Women whose breasts are rebuilt using implants face additional risks, including extrusion of the implant (when the implant breaks through the skin) and implant ruptures.
As for women’s satisfaction after mastectomy, the Times article notes that “a systematic review of 28 studies found that women who went without reconstruction fared no worse, and sometimes did better, in terms of body image, quality of life and sexual outcomes.”
Women who choose not to undergo reconstruction do so for a variety of reasons. Recovery from a mastectomy is quicker and less likely to have complications compared to recovering from both a mastectomy and reconstruction. Some women who don’t have reconstruction at the time of their mastectomy simply don’t want to go through another surgery — like Rebecca Pine, a Long Island woman, who survived cancer and co-founded a photography and writing project called “The Breast and the Sea,” who says, “It’s a tremendous amount to put your body through, and it’s not like we’re going to get our breasts back.” Sometimes women are unable to have reconstruction because of medical issues. Some women don’t want to rebuild their breasts, without nipples, and without sensation.
For many women the problem isn’t about how wonderful breast reconstruction will be or how difficult the process can be. It’s fighting the idea that not having breasts makes a woman less of a woman or “abnormal.” Dr. Nicola Dean, spokesperson for the Australian Society of Plastic Surgeons, told The Huffington Post Australia last week that breast reconstruction is really about “the right to return to being a normal woman” (as if a woman without breasts isn’t normal!).
The New York Times article includes a story told by Geri Barish, president of the Long Island advocacy group 1 in 9. When Barish decided to skip reconstruction, she was scolded by a doctor who said, “‘How can you walk around like that? You look deformed.”
These are the types of messages that women faced with a mastectomy are fighting. It’s not that women who decide to “go flat” are inherently anti-reconstruction. They are challenging the idea that having breasts is a requirement, rather than a choice. They are also challenging the idea of who owns the decision making about their bodies: the women themselves or the surgeons.
At the end of the day, it’s the woman herself who faces the risk of complications and a longer recovery period. Whatever a woman’s reasons for choosing to have or not have breast reconstruction surgery, all want to be seen as women, regardless of whether they have breasts. As Debbie Bowers and Marianne DeQuette Couzzo share in the video, they are happy to be alive and now “wear their flat chests proudly.”
The most important words that punctuate this article and issue are information and choice! No one, including the doctor has the right to express any judgment of what decision is made. It’s a completely personal choice whether or not health issues are involved.
Thanks for highlighting an important topic.
Thanks for sharing your story. It’s really inspiring for those women who underwent breast cancer. There are really no pros and cons to whether go for reconstruction or not.
I think that when someone can achieve successful results with breast augmentation after surgery & it improves their body image then great, especially if it is the same day mastectomy and the nipple and nerves are saved. However, when the nipple is lost & the nerves gone there is no need for the fakeness and a lot of women find it hard to adjust especially with the complications.
Theses are all excellent concepts and the points are well taken. Any life changing medical condition that creates a change in our body is physically and emotionally taxing. These changes can occur at birth, with trauma or cancer. We all have different capacities to deal with these changes and the options for additional treatment to restore our bodies are frequently complex decisions. We operate on children with cleft lips and palates to restore appearance and function. Burn patients seek a multitude of procedures to restore form and function. Form includes appearance. A child missing an ear has the ability to have one reconstructed. This ear may or may not have the ability to have functional hearing. Breast reconstruction is not any different. The Breast will not make the woman any more “female”, however, it is part of the healing process for many women. The need to have a persons body “restored” after an injury or surgery is a normal desire and is the right choice for many people and does help them with their “healing process” following an injury, disease, or surgical treatment. It is a reasonable option for every woman who undergoes treatment for breast cancer although it may not be the correct choice for every woman.
I’d love to hear more about women (like me) who have had one breast removed and opted not to reconstruct – – and that don’t want to use a prosthetic. How do you deal with having only one breast? My clothes don’t fit me well. I have trouble supporting just one side in garments meant to support two breasts…
I’m flat on one side for six months now and I do not like it. I never had big boobs so I thought just having my health should be enough..yet I feel incomplete. I’m considering reconstructing after buying a prosthetic I love the feeling of having symmetric breast. I also love the energy that I have now and my fear is setting myself backwards for something cosmetic. A very hard choice but ultimately I think I will have the surgery.
Completely agree. It’s a 100% personal choice.
I’m very proud of you both being a breast cancer survivor and went thru implant rejection for 5 years to end up with no breast only scars if I’d known about your walk I would have joined you stand proud my sister and god bless you
I choose to be flat..no cancer just a very high mutation cancer risk 85% my gen test came back so after so many of my family members dyed from cancer I fig cut down the chance remove the chance…ive had removal an repair surgery an it set me back a year so now doc says 1 to 2 year to heal..anyone out there having problem I feel like a wet leather in sun or wearing seatbelt tight 24/7…would I do again yes.. crazy maybe..
I had a double mastectomy in 2014. I was not told I would not have feeling back in my breasts or nipples I was told it was possible to get it back in the breasts. I should expect to give it about a year if feeling was to come back.
I had have the implants exchanged on numerous occasion’s. All this being said I did get my feeling back in some of the outter breast. As far as the nipples go, I really wanted to keep them and was able to. I did not want to get tattoos over and over again through the rest of my life. I can say honestly I can feel a little pressure on my nipples now in 2018.
My breasts are not a definition of who I am but not having them made me feel a loss daily when I got out of the shower.
My reconstruction helped me mentally be able to adjust and move forward, either way I am a Survivor who wants to be here for my family and grandchildren for a long time to come.
As stated earlier is a personal choice. One I would make again even after many surgeries.
I was blessed to find my doctors and recommend them to anyone going through this curve ball that has been thrown at you.
Dr. John West and Dr. Justin West
Breast Link Cancer Center
(I went to the one in Orange, CA.)
Blessings to all of my strong sisters out there.
I have had a double mastectomy and never felt the need to have breast reconstruction surgery. I know that my breasts were there for a reason, and now they have had to be removed for a reason, and I am okay with that. Just as if I lost a leg, I would still be me, losing my breasts does not change who I am at my core.
When we limit our sense of self to our physical appearance, even a small wrinkle or a grey hair can bruise our fragile ego. When we realize that we are more than just the sum of body parts, more than just the body-mind complex, changes in our physical appearance do not matter much.
I refuse to limit myself, instead I insist on reveling in the realization of my highest identity- I am this glorious Universe Itself, and love the whole of ME, including every wrinkle, grey hair, and scar.
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